Journal of Disability Policy Studies:
Participation of Individuals With Developmental Disabilities and Families on Advisory Boards and Committees
Sharon Hauss, Research Associate with the Institute's Center for Disability Information and Referral
Joe Caldwell of the Association of University Centers on Disabilities (AUCD)
Bethany Stark, University of California, Los Angeles

The authors explore supports that enhance participation of individuals with developmental disabilities and family members on advisory committees. Focus groups and open-ended surveys were conducted with staff from University Centers for Excellence in Developmental Disabilities and members of their Consumer Advisory Committees. Five themes emerged: (a) individualized supports, (b) financial supports, (c) coordination and communication, (d) leadership development, and (e) value and outcomes. Themes provide practical guidance to organizations as well as highlight broader systemic issues.

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